Bike ride for charity – Brewood to Brighton

Brewood to Brighton bike ride

A journey originating with the idea to organise a bus ride in aid of Alzheimer’s disease charities, after members of their families were diagnosed with dementia. A gathering of friends in the local pub on a Friday night turned that idea into a reality and the Tett family bike and bus ride challenge began!

Brewood to Brighton bike rideThe challenge was as follows: two groups will do the journey of circa 240 miles between Brewood and Brighton – half on push bikes and the rest using only public buses. The trip was to be accomplished over 4 days, starting from Brewood on 10 April 2019 and both groups met up each evening at set stops en route before finally reaching Brighton on Saturday 13 April where the journey was completed with recapping over another beer or two in celebration of the achievement.

We are grateful to be one of the chosen charities that the Tett family decided to raise money for, alongside Cancer Research. The Tett’s have been incredible supporters and they have expressed great belief in our project. We had the pleasure of knowing Huguette Tett, which you may have seen in our video, responding beautifully to her favourite French songs from her youth.

The total funds the family donated to Music for my Mind were £3,028, which will help us further on our mission to bring personalised music to everyone living with dementia, in order to improve their quality of life and that of their families and carers.

If you would like to organise your own fundraising event in support of our charity, you can get in touch with us by emailing info@musicformymind.com or using our contact form here.

 

Quantum Care and Music for my Mind

Quantum Care logo

Music for my Mind’s research supported by Quantum Care homes

We are very excited to announce that we have partnered with Quantum Care on conducting our research programme. They are a not-for-profit care home group operating throughout Hertfordshire, Bedfordshire and Essex, serving over 2,000 older people. One of Quantum Care’s core values is providing high quality person centred care, which is essential for us and for the end result we are trying to achieve – bringing benefits for people living with dementia.

Similarly to Music for my Mind, Quantum Care put a strong focus on innovation. One of our charity’s aims is to utilise new technology and make it usable in a care home setting. We are excited by the opportunity to bring new technological solutions for creation and delivery of personalised playlists for their residents.

“We believe that the outcomes of a research project such as this, can have a hugely positive impact not only on our residents but may have significant implications throughout the wider UK dementia care system.” – Debbie Gilard, Head of Corporate Services at Quantum Care

Our project will look to benefit not only the residents from the care homes, but their family members, friends and carers too. Seeking the care home staff’s input and thoughts on how we can create a process that is beneficial to them too, is important to us, as they are the people who work on the frontline of dementia care.

You can read more about the first stages of our work in the Quantum Care homes, in their annual report here.

If you would like to read more about our research programme, visit our Feasibility Studies page.

Sosei Heptares and Music for my Mind Partnership

We are delighted to announce the Sosei Heptares and Music for my Mind partnership. Sosei Heptares is a company aiming to make a significant contribution to improving the quality of life and health of people around the world, by discovering, designing and developing innovative and effective medicines, through its world-leading patent-protected technology and platform.

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Utilising technology in dementia care

Music for my mind and technology

Recent technological developments from the field

As a technology-driven charity, we are excited when we read about all the technological advancements being implemented in the health system and into care, particularly for people living with dementia. We believe that utilising existing technology pieces to improve the quality of life for people with dementia is what the future of care should be.

We’d like to share with you some notable news stories from this field.

       According to the Business Insider, the market for tech products for ageing Baby Boomers is expected to reach $20 billion by 2020. Digital technology is becoming more and more accessible to older people and no longer only aimed at benefiting younger users. Some of the technologies highlighted in the article include robot companions, smart speakers, location trackers, on-demand care service and life-like pets.
Read the full story here:
https://www.businessinsider.com/tech-products-for-aging-baby-boomers-patients-with-dementia-2019-1?r=UK.

       It’s been known that reminiscence therapy has many beneficial effects for people with dementia. The ability to immerse yourself in a familiar place and relive precious memories, is exactly what Dorset-based care and support provider Tricuro offers to people with dementia, through Virtual Reality. Day Service Officer Mika Davis said: “When you’ve got a disability, particularly like dementia it closes so many doors and I don’t think people’s pasts should be one of those doors that’s closed.”  This experience also allows for a closer connection and bonding between the care home staff and their residents.
For the full story:
https://www.wessexfm.com/news/dorset-news/2791314/how-vr-techs-helping-dorset-dementia-patients-share-their-pasts/.

       The power of new technology has also been harnessed in research and diagnosing early stages of Alzheimer’s disease. A research at the University of California San Francisco is working with artificial intelligence to detect very subtle changes in levels of specific molecules in the brain, surpassing the time a clinical diagnosis can be made by six years. “One of the difficulties with Alzheimer’s disease is that by the time all the clinical symptoms manifest and we can make a definitive diagnosis, too many neurons have died, making it essentially irreversible,” says Jae Ho Sohn, MD, MS, a resident in the Department of Radiology and Biomedical Imaging at UC San Francisco. This new method can help diagnosing Alzheimer’s early on, giving the possibility to administer treatments that can help stem the condition’s progression.
For the full story, click here:
https://www.ucsf.edu/news/2018/12/412946/artificial-intelligence-can-detect-alzheimers-disease-brain-scans-six-years.

What’s in store for 2019 – looking ahead

whats in store for the year ahead music and dementia

Achievements and visions

What have we achieved so far and what we plan to, looking ahead in 2019. The past year has been an inspiring and exciting one for Music for my Mind, filled with incredible support from so many people. Our journey and key milestones so far have included conducting pilot studies in care homes, assembling an influential and highly skilled group of Trustees, staff, advisors and during 2018 – gaining over 350 supporters.

We have developed important partnerships with a range of organisations and individuals who can help us, in the last year most importantly with Quantum Care – a group of care homes excited about innovation and use of technology to improve the quality of life of their residents.

Over the past year we have also been fortunate enough to expand our team and welcome a full-time Project Assistant, Dimana Georgieva. We also have the vital support and advice of many experienced consultants in strategy, fundraising, marketing and technology development.

Looking ahead

With all these achievements, we are raring to go to dive into another year of this exciting journey. Looking ahead, our main activities in 2019 will focus on research and further technology development.

Music for my mind - looking ahead in 2019Research:
In 2019 we will be undertaking the first phase of social science/mixed methodology research to explore issues such as:

  • a systematic review of the literature on music and dementia;
  • a favourite songs review by age in non-dementia populations.
  • demography in care homes, including
    § stages and severity of dementia,
    § the proportion of residents with relatives and how often they visit,
    § who has power of attorney?
    § drugs being prescribed
    § music and other activities currently being used

We are working on our programme of feasibility studies and accompanying protocols, including consideration of appropriate levels of ethics review. Through this programme, we will explore some key operational questions such as the frequency, timing and length of use of personalised music, impact on sleep or wellbeing, etc.

MFMM looking ahead in 2019Product development:

Our other main are of focus throughout the year is to continue developing a tool for creating and delivering personalised playlists that can easily be used and implemented in care homes. During 2019 we aim to draw up the specification for an app to enable rapid creation of personalised playlists, using existing music delivery services (such as Spotify) and based on people’s musical and behavioural background. This involves a lot of tests and versions, to reach a product that will work best within a range of care settings.

Alongside these two main areas of activity, we will continue to raise awareness about the effects of personalised music for people living with dementia, through different campaigns and initiatives throughout the year. We will also keep our stakeholders and supporters informed of relevant news in this area and other relevant technological or therapeutic advancements.

We at Music for my Mind hope to get much closer in 2019 to our vision for every care home in Britain to have a music programme and for everyone living with dementia to benefit from personalised music as an integral part of the therapy and care they receive.

To support our app development, visit our crowdfunding page to donate.

Redbourn Fun Run 2018’s generous contribution

Redbourn Fun Run supports Music for my Mind

Music for my Mind was delighted to be a part of the Redbourn Fun Run 2018 held on 20th May 2018, organised by a group of volunteer mums from the village. The event had a great turnout and support from enthusiastic and energetic families ready to participate in the fun. There was a great sense of close community coming from all of the 813 participants and the over 1000 spectators who attended.

The start line at the Redbourn Fun Run 2018

The RFR chose Music for my Mind as one of the charities to sponsor through the event and we had a great time manning our stall and talking to families about music and dementia and trying to discover their favourite music playlists! Our Founder, Keith McAdam also started the 3km race and presented the winners with their medals and prizes.

Founder Keith McAdam awarding the proud winners

As a result of the event, the organisers of the Redbourn Fun Run and their sponsors donated £1532.75 to our cause, for which we are very grateful. The money will be put towards our ongoing project of discovering people’s favourite playlists within an hour and finding the best, easiest to use way of delivering those playlists in a care home environment.

Congratulations to all the winners!

Medals awarded at Redbourn Fun Run 2018

All photos © Wendy Gill

Music for my Mind is expanding the team

*Update: this job opportunity is now expired

 

Head of Strategy and Development

12 months Fixed Term initially

£30,000-£35,000 depending on experience 

St Albans area, Hertfordshire

 

Music for my Mind is a new and timely charity aiming to bring personalised music playlists to people living with dementia. Although people with dementia may not be able to communicate or recognise loved-ones, amazingly, they may still be able to sing along to favourite music from their teenage years. There are estimated to be 850,000 families affected by dementia in Britain, 50 million worldwide.

To date the charity has been operating on a volunteer basis with a committed and well-connected Trustee Board.   The current crowdfunding campaign indicates the breadth of public empathy for dementia. We have raised sufficient funds to recruit for our highest priority position – to lead on strategic development and fundraising for the charity.

 

About the role:

This post will work with the Founding Chairman of the Board, who lives in Hertfordshire, supported by a part-time Project assistant.  The Trustees are committed to building the evidence base that listening to personalised music playlists enhances well-being and quality of life for families affected by dementia. The long-term goal is to test the efficacy and cost effectiveness of this intervention for dementia in a large clinical trial.

Working closely with the Chair and board of trustees, you will provide and deliver the long-term strategic plan and budget to develop the Music for My Mind Charity. You will drive fundraising opportunities, including making grant applications, and manage donors to ensure a sustainable income to deliver the long term strategic plan.

You will work closely with Playlist for Life, Edinburgh University, and other like-minded organisations to deliver the goal of making personalised music available to everyone living with dementia.

Ideally you will have a proven track record of strategic planning and delivery, and of securing funding in a tough and complex financial climate in a senior management or strategy development role in the charity or university sector. You will have extensive experience in financial management and budget development, be a confident communicator with excellent written and verbal communication skills, and relationship management abilities.

Music for my Mind is an important new initiative and this position creates a fabulous opportunity for someone who can make a massive impact on many people’s lives.

You can read the full Job Description below. To apply, please send your CV and Cover Letter to contactmfmm@gmail.com.

Closing date: July 1st 2018

View Job on Charity Jobshttps://bit.ly/2sw9zuY

Job Title

Head of Strategy and Development – Music for my Mind Charity

Reports To

The Head of Strategy and Development will report to the Chair of the Board of Trustees of Music for my Mind

Job Overview

Working closely with the Chair and board of trustees, provide and deliver the long-term strategic plan and budget to develop the Music for My Mind Charity. Ensure appropriate standards are in place and compliance with the law and regulations.

Drive fundraising opportunities, including making grant applications, and manage donors to ensure a sustainable income to deliver the long term strategic plan

Work closely with Playlist for Life, Edinburgh University and other like-minded organisations to deliver the goal of making personalized music available to everyone living with dementia

Responsibilities and Duties

  • Provide the long term strategic plan and budget to develop Music for My Mind within the direction set by the Chair and Board of Trustees and gain Board approval
  • Develop and secure fundraising opportunities to ensure a sustainable income to further the charity’s goals
  • Prepare the annual plan and annual budget for approval by the board of trustees and drive delivery of the fundraising plan and agreed financial targets
  • Responsible for the financial health of Music for My Mind, management of the budget and finances
  • Act as an ambassador with external stakeholders in order to advance the charity’s aims
  • Responsible for management of marketing, communication and charity administration
  • Regular attendance at Board meetings and supply regular reports to Music for My Mind trustees and to other collaborators
  • Ensure the organization has the right management systems and structures in place to carry out its work effectively, safely, and professionally and to fulfil its legal, statutory and regulatory responsibilities
  • Take appropriate steps to manage risks that could significantly impact Music for My Mind

Qualifications and Experience

  • Degree or equivalent

Competencies

We are looking for someone who can demonstrate:

  • Commitment to the aims and ethos of Music for My Mind
  • A proven track record of long term strategic planning and delivery in a senior management or Strategy Development role in a charity or university
  • A proven track record of securing funding for a charity or university in a tough and complex financial climate – including experience of making grant applications
  • Excellent experience in financial management and budget development skills
  • Excellent writing skills
  • Ability to communicate the strategic plan
  • Excellent all-round communication skills and relationship-management abilities
  • Personal drive and a positive, optimistic outlook, energy, integrity, creativity and imagination, adaptability and responsibility
  • An understanding of key health and dementia issues
  • An understanding of marketing and PR
  • An understanding of the voluntary and community sector in the UK and the issues it faces
  • A working understanding of digital media platforms

Location

  • Working from home, based in the south east with easy access to Redbourn and the St Albans area. Frequent travel required to Redbourn and other parts of Hertfordshire and London
  • Occasional travel in the UK

 

Remuneration

Salary range £30-35k in the first instance – initially a 12 months fixed term contract

Hours

37.5 hours a week – can be worked flexibly from home. In practice may be longer as individual expected to attend networking and campaign events outside office hours

Redbourn Fun Run in support of Music for my Mind

Redbourn Fun Run in support for Music for my Mind

The Redbourn Fun Run was launched in a special assembly at Redbourn Junior and Infant Schools and will be in support of Music for my Mind.

Our founder, Keith McAdam, visited the schools to speak to the pupils about the power of music. The annual Redbourn Fun Run will be on 20th May 2018 at the Redbourn Leisure Centre and will raise funds for Music for my Mind. There will be 1 km, 3km and 5km races, plus a relay race with teams of 4. All participants will receive a Fun Run medal and winners will receive a trophy. The first 100 children to sign up will receive a free t-shirt. There will be activities and stalls offered all day to keep the family entertained.

Keith McAdam awarding the winners of the competition to design the Redbourn Fun Run tambourines

Keith also congratulated the two pupils, Matilda Bennett and Poppy Bullen, who won the competition to design tambourines to be shaken by the supporters and to encourage the runners.

To read more and enter the Fun Run, visit their website: http://redbournfunrun.co.uk/

To read how the event went and see photos, read this article.